About

Musings09
Hertfordshire, UK

Bio: September 2014 marks the 30th anniversary of the day when I woke up with an agonising headache. It took over 2 months to diagnose Viral Encephalitis and years of trial and error to identify coping strategies that have enabled me to live with Acquired Brian Injury, the permanent consequence of my Encephalitis. This blog is my opportunity to share the tips and tricks that I had to learn for myself and that have helped me to handle the situation I found myself in. It would be nice to think that they may assist others who find themselves left to flounder too. I am not the illness. There is far more to me than that. What do I enjoy? History of Art and visiting galleries, the ballet and theatre, cooking - especially baking and drinking champagne and black coffee. The radio and iplayer are my great friends particularly as I can stop and replay over and over again until what I'm listening to as sunk in. I have a real weakness for radio 4 quizzes and comedy and can listen to them over and over again. Despite having appalling hand eye co-ordination I do enjoy watching sport. However taking exercise has to come lower down on my list of priorities than I would like. My intent though is to shove it up the list - honest!

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3 thoughts on “About

  1. Thank you, thank you thank you so much! I can not thank you enough for sharing this invaluable experiences. This information is brilliant! I am four months in to what has felt like a dark confusing cave, that I can sometimes pop my head out of. I can not yet read all of your blogs, I need them printed, and will need to read, then re-read, then come back back and read!. but what I just read is EXACTLY what is happening – it gave me tingles and made me laugh and cry. So, hopefully I will be able to adjust to my new life sooner, with some of your tips.
    Many thanks
    Frances Jack
    Melbourne, Australia

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  2. What a testament to your strength and perseverance! I can relate that it’s nearly impossible for anyone to truly understand the challenges associated with an acquired brain injury after something like encephalitis. Only those who were very close to me and saw my descent into a shell of a human being can have a sense of what recovering from this is like. Thanks for sharing your story.

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    • Sorry it’s taken so long to acknowledge your comment. Thank you for your kind words. The whole reason I started a blog was to try and share my experiences and coping strategies in the hope that others may find it useful.

      Like

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